WEEK SELECTOR - do not 'jump' into table only jump to previous tables or forwards to new pages
2008-2009
Wk1|
WK9 |
WK17 |
Wk33|
Wk39|
Wk41|
2009-2010
Wk01|
| Appropriate Emotions |
Depression | Dexterity | Flexability | Incontanance | Mental Agility |
Strength | Tremor | Speech | ............................COMMENT.......................... | |
|---|---|---|---|---|---|---|---|---|---|---|
| Wk01 Mon 30 Mar, 2009 07.35 | 57 | 25 | 56 | 56 | 19 | 58 | 54 | 56 | 59 | Speech ok - had a long talk yesterday with Lai-Yen's prospective teachers at St. Pius's and dressed without hands before ascending 1x1 with ease, a few minutes ago |
| Wk01 Mon 30 Mar, 2009 21.10 | 57 | 27 | 50 | 53 | 19 | 58 | 50 | 56 | 59 | 1x1 (just) ascent. Been in bed since I arrived home at 14:15; I am suffering as a result. Far from feeling 'rested and rareing to go' the lomg rest seems to have had a detrimental result. I am certainly stiffer and more lethargic... I will now do the remaining spam from today which will probably take till 23:00 and then I'll head to bed |
| Wk01 Tue 31 Mar, 2009 06.54 | 57 | 25 | 52 | 58 | 19 | 58 | 54 | 55 | 59 | in the end; last night it took until 01:00 to finish the spam as there were 4 pages of 'undetermined' stuff, most of it 'zixencrypt'ed to go throught. I DID feel tired as I said above, but, eat a few (3) bananas and went to bed after shower |
| Wk01 31-Mar-2009 15.44 | 58 | 25 | 52 | 58 | 19 | 59 | 53 | 56 | 59 | Had to pass on the links for my access to work stuff again to paul and carol at work this afternoon as they had misplaced it - There should be a signed copy floating about somewhere, but goodness knows where.To be safe I've put it in the blog now I have found it. |
| Wk01 Thu 2 Apr, 2009 06:48 | 58 | 25 | 52 | 55 | 19 | 58 | 55 | 56 | 59 | Did 2x2 ascent and no hand dress 10 punch with both hands at: 135°; 90° and 45° |
| Wk01 Fri 3 Apr, 2009 23.33 | -- | -- | -- | -- | -- | -- | -- | -- | -- | 2x2 ascent; dressed no hands and Pooë at 10:00 this morning |
| Wk02 Mon 6 Apr, 2009 08.21 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Dressed no hands at 07:00; 1x1 stair ascent |
| Wk02 Tue 7 Apr, 2009 10:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Poo |
| Wk02 Wed 8 Apr, 2009 23.14 | 58 | 25 | 56 | 53 | 19 | 59 | 54 | 56 | 59 | Have got used to Lina being a total fool, shouting at Lai-Yen when he really is doing nothing wrong... Yesterday she was being totally irrational and driving , on purpose, quite dangerously. While I was very distressed at the tinme it did not impact on me the way it has, previously, hence the 'depression' rating. Had as good chat with Chris Towers today - so speech rating not too bad either. Now off to bed, having done the spam-1x1 ascent,just, when I came up |
| Wk02 Thu 9 Apr, 2009 06.47 | 60 | 20 | -- | 53 | 19 | 59 | 50 | 56 | 59 | Red letter day indeed - actually a 'brown' letter day. I have just had another Poo and a PINK FLOYDE dvd is on its way say blockbuster - cool |
| Wk03 Sun 12 Apr, 2009 23.13 | 55 | 20 | 56 | 58 | 18 | 60 | 50 | 58 | 59 | 2x2 stair 1 hour ago and no hand dress so not too bad and went to moor park to watch lai-yen and lina play - was affected by the sun :) but stayed in the shade as much as possible and survived ok. I had a long e-talk with dimitris about orthodox christianity... |
| Wk03 Wed 15 Apr, 2009 07.50 | 60 | 20 | 57 | 60 | 18 | 60 | 54 | 56 | 59 | Got Dressed - no hands; walked OK a la Tim but only came up 1x1 (nearly 2x2 but no)-Yesterday, for the record, I had a good day, mentally, but was unable to dress; climb the stairs with ease and felt very low on physical energy after going to Tim in the morning. I did manage a round of the carpark and did remember to ring for the foot appointment. They actually said, eventually, they would do a home visit as I could not easily access the clinic in town but as yet have not rung to tell me when. |
| Wk03 Fri 17 Apr, 2009 21:40 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Poo |
| Wk04 Wed 22 Apr, 2009 01.27 | 60 | 20 | 60 | 56 | 17 | 60 | 53 | 56 | 59 | Ability... seems ok - witness today, talking to tim and did not 'lose it' more than once; depression - feel ok; Dexterity - managed both slippers at 01:10; Flexability - in contrast to when I went to bed at 21:00, I was able to ascend 1x1 AND Managed to dress no hands with the exeption of using my hands for my LEFT foot - but relatively ok; Incontinance - this morning went 2 hours befre going to toilet at 09:00 'under control' at tmstc; Mental agility - seem to be 'on the ball' ok remembering things and updating PC stuff; Strength - Have not done multipule 'squats' for some time but stood for some time at Rachel's birthday party at the weekend and feel ok now; Temor - not too bad; Speech - feel ok now and throughout the day have not been too bad, starting with a good chat to Tim this morning and could still speak tonight to Lina. |
| Wk04 Wed 22 Apr, 2009 03.03 | -- | -- | -- | -- | -- | -- | -- | -- | -- | 2x2 ascent with laptop; 1 squat - bed |
| Wk04 Thu 23 Apr, 2009 11:30 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Drove myself to tmstc after Poo |
| Wk04 Fri 24 Apr, 2009 01:39 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Diarrhoea - possibly the salsa (23:00 yesterday) - but it was nice! Otherwise OK - no paralysis - infact 1x1 with ease |
| Wk04 Sat 25 Apr, 2009 21.39 | 58 | 22 | 58 | 55 | 17 | 62 | 55 | 56 | 59 | Came up 2x2 - although I was going to say I felt low... I have spent the day trying (and in the end, succeeding) to save a bbc web page and modify it so I can get the content at work. This is the page in question and success was finaly achived by disabling all the scripts, which does not seem to have adversly affected it. The green links go to my server but I think the bbc intend to keep the archive available... |
| Wk05 Tue 28 Apr, 2009 03.02 | -- | -- | -- | -- | -- | -- | -- | -- | -- | 1x1 ascent walton centre MS nurses yesterday; do not feel tired in evening as I usually do and went to bed at 19:45 |
| Wk05 Tue 28 Apr, 2009 07:05 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Got dressed 'no hands and ascended 1x1 with ease. At 03:30 This morning I did 11 sqats and steching across the living room floor |
| Wk06 Mon 4 May, 2009 18.30 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Poo at 17:00 - off to bed! |
| Wk06 Tue 5 May, 2009 21.57 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Dressed no hands 30Mins ago - this morning at 08:00 also dressed without hands and came up 1x1 no problem just now |
| Wk06 Fri 8 May, 2009 22.13 | -- | -- | -- | -- | -- | -- | -- | -- | -- | 2x2 |
| Wk06 Sat 9 May, 2009 21.13 | 58 | 22 | 59 | 58 | 17 | 63 | 55 | 57 | 60 | Poo at 17:00 and now 2x2 ascent so eyes a bit wobbly. Lina having |
| Wk07 Wed 13 May, 2009 02.03 | 59 | 21 | 59 | 50 | 17 | 63 | 53 | 57 | 58 | Looking back over last week today, by comparison, was bad. I needed Lina's help to walk to the toilet and on return home, despite in the car cooling down with the cool air from the duct playing over my face I did not really recover. I have,now, recovered a bit and am getting better but am still weak. I was able to ascend the stairs 1x1 and am looking forward to a visit by the stairlift john tomorrow |
| Wk07 Fri 15 May, 2009 01.20 | 59 | 21 | 62 | 58 | 17 | 63 | 54 | 57 | 57 | Poo yesterday evening at 21:00 and came upstairs now at 1x2 left 1 right 2 after doing 1 squat downstairs. My speech seems to be a bit more laboured than reacently - Hi Ho |
| Wk07 Sat 16 May, 2009 16.09 | 59 | 21 | 60 | 55 | 19 | 62 | 50 | 57 | 55 | Went to sleep last night and wet myself trying toget up at 02:00 I recovered enough to get upstairs and 'spam' finaly going to bed at about 07:00. After going to Lancaster at 13:30 with Lina I was feeling very tired and could only stand with difficulty. I also went for a Poo at 14:00 and am now going to bed (16.23) |
| Wk07 Sat 16 May, 2009 23.50 | 60 | 20 | 63 | 60 | 17 | 63 | 57 | 57 | 57 | Slept until 23:00 and now 2x2; no hands OK |
| Wk08 Mon 18 May, 2009 20.37 | 60 | 21 | 60 | 62 | 16 | 63 | 54 | 55 | 57 | leftxright to exercise I have just done 1x2 up the stairs and my strength SEEMS to be a bit better |
| Wk08 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Friday went for a Poo at 21:00 Saturday Went to see Thomas at Skipton Abbey - walked a lot; talked alot (emma and peter came too)and lasted OK considering it was warm Sunday Went to Moore Park - it had warmed up even more and walked 'until I dropped'from the entrance gate to the swings then onto the road for Lina to pick me up Monday When I wrote this I slept most of the day! and went to bed after spamming at Tue 26 May, 2009 00.37 |
| Wk09 Thu 28 May, 2009 20.47 | 65 | 18 | 64 | 64 | 16 | 63 | 55 | 55 | 58 | Dressed this morning, having been asleep for 7 hours, and could immediatly put my trousers on without pulling my legs up. have just had a Poo and maanaged to reach 74rpm on the bike at tmstc and cycled 2 km in 3 minutes. Leaving my 'post', whe at hyome and doing 3 or more stair ascents seems to be 'ok' and generally feel ok |
| Wk09 Sat 30 May | -- | -- | -- | -- | -- | -- | -- | -- | Went to see my parents and had a good weekend. The very hot temperatures really knocked me out. the day on saturday reached 28° (Alt+0167=°) and on Sunday 30°. I went to the toilet again on saturday at 11:00 | |
| Wk10 Sat 06 Jun, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Temp. fell this week and made contact with Craig again via Preston's Ceragen Centre (total wellbeing) in Guild Hall Archade. Poo at 13:00 today |
| Wk11 Sat 13 Jun, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Poo at 16:00 |
| Wk12 Fri 19 Jun, 2009 14.25 | 65 | 18 | 64 | 60 | 16 | 63 | 50 | 55 | 58 | I have not blogged for a while and have been rather 'lack-a-daysical' about filling in this record. I had my grab rails installed in my bedroom yesterday - just before I move. I should say that, in an attempt to improve Lai-yen's schooling Lina has organised a move to fulwood and we have bought a house there. I had a poo this morning at 8:30 ish an am now going to 'spam' some more(16.52) |
| Wk13 Sun 21 Jun, 2009 10.26 | 66 | 17 | 65 | 62 | 16 | 64 | 55 | 58 | 59 | For the second morning in a row I have woken up and dressed 'no hands'. Although eary to tell, I think this is due to nothing more exciting to sleeping under a blanket. Normaly I sleep under a 15tog (winter) quilt and, although warm, wich I like, is prehaps too warm. This seems to underline the fact that Mr. Uthoff and his syndrom have a lot to answer for :) ! I have had two, warm, potatoe croquetts for breakfast and still mannaged a 1x1 ascent to the study where I found my single core 3GHz machine still plugging away doing the lastest batch of steam trains - it should be finished late tonight. We'll see. On the subject of 'too hot' I have ordered a 'Do-rag' and with the experience of my blanket behind me I await its arrival with hope. |
| Wk13y Sun 21 Jun, 2009 17.43 | 66 | 17 | 65 | 62 | 16 | 64 | 57 | 58 | 59 | Whereas this morning I managed 1x1 with difficulty, now ( at 17:30 actually) I did 'no hands'; 1x1 and finished with a 2 on my right foot, after sleeping since 15:30. This was due to a visit to the Macdonalds at the capital center, caused by Lai-yen going to sleep in the car! on the way to 'Rascals'. Now for a bit of admin and spam. |
| Wk13 Sun 21 Jun, 2009 20.46 | 66 | 17 | 66 | 63 | 16 | 64 | 55 | 59 | 59 | 1x1 just; asleep since hot tea at 19:30;let's see what tonight brings |
| Wk13 Mon 22 Jun, 2009 07.25 | 66 | 17 | 65 | 62 | 16 | 64 | 55 | 59 | 59 | 1x1; asleep since 22:00 ysterday; cool last night (alt167 15º) so changed top from tee shirt to fleece. Sleeping temperature seems to be the key - I will try the air-con at 18ºC tonight with tee shirt |
| Wk13 Tue 23 Jun, 2009 15.42 | 66 | 17 | 65 | 62 | 16 | 64 | 55 | 59 | 59 | I have just come upstairs 1x1 with my laptop; dressed this morning 'no hands' and worked since 08:00 this morning and poo at 12:00 about |
| Wk13 Wed 24 Jun, 2009 07.20 | 66 | 17 | 65 | 60 | 16 | 64 | 53 | 59 | 59 | Did a bit of 'spam' last night, having been at work all day (8:00-15:00) and determined NOT to 'spam' this am. This in an attempt to 'sync' my body clock so I can go all day today... I came up 1x1, nearly (but not quite) dressed without hands and had quick 35Cº (alt 167) shower at 06:30 - so far so good |
| Wk13 Thu 25 Jun, 2009 07.16 | 66 | 17 | 65 | 61 | 16 | 64 | 53 | 59 | 59 | Got dressed 'no hands'; came upstairs 1x1; yesterday the air-con was turned off - I could hardly walk - Paul turned it on and then, within 15 minutes it was turned off again - draw you own conclusions... |
| Wk13 Fri 26 Jun, 2009 00.20 | 66 | 17 | 65 | 61 | 16 | 64 | 53 | 59 | 59 | Got dress very nearly (but failed on left trouser leg) 'no hands' and came upstairs 1x1 (just) - I had a good day at work (air con on) and came home at mid day. I slept most of the afternoon so now 'spam'zzz |
| Wk14 28 Jun, 2009 15.16 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Went for a poo yesterday at 23:00; dressed no hands; ok once it cooled down - it is 27Cº (alt 167)- far too hot |
| Wk14 Mon 29 Jun, 2009 00.12 | 66 | 17 | 65 | 61 | 16 | 64 | 53 | 59 | 58 | Slept since 20:00 until 23:05 yesterday and feel much better no. dressed no hands and 1x1 upstairs. configured server and PC number five and feel ok |
| Wk14 Mon 29 Jun, 2009 21.36 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk15 Tue 7 Jul, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo at 22:00 |
| Wk15 Sat 11 Jul, 2009 01:30 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk16 Wed 15 Jul, 2009 11:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk17 Sun 19 Jul, 2009 21:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk17 Sun 19 Jul, 2009 23.37 | 66 | 17 | 65 | 62 | 16 | 64 | 52 | 59 | 59 | Went to bed at 20:00; no hands dress;1x1 stair ascent with ease; no squats (did 5;rest;5 last night |
| Wk17 Thu 23 Jul, 2009 17:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk18 Mon 27 Jul, 2009 09.00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk18 Friday Jul 31, 2009 17.13 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk19 Sun 2 Aug, 2009 13.49 | 67 | 16 | 65 | 60 | 15 | 65 | 53 | 59 | 60 | did quite well just now. Having had garlic bread; pitzza and ascending stairs 1x1 My eyes arew tremoring, but not worse than expected, given the physical exercise. This morning, after a 6 hour sleep I managed trousers no hands and nearly (but not quite) pants too! and then ascended at 2x2. Keeping cool really does seem to be the key although, despite the optomistic scores on the left I do seem to be rather less capable as far as stiffness is concerned - I did 10 sqats too this morning! |
| Wk19 Mon 3 Aug, 2009 19.23 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk19 Fri 7 Aug, 2009 08:15 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk19 Sun 9 Aug, 2009 10.46 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk20 Fri 14 Aug, 2009 12:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk20 Sat 15 Aug, 2009 to | -- | -- | -- | -- | -- | -- | -- | -- | -- | |
| Wk21 Mon 17 Aug, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | ill - paralysed |
| Wk21 Tue 18 Aug, 2009 08:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk22 Fri 28 Aug, 2009 12:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk23 Wed 2 Sep, 2009 12:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk23 Fri 4 Sep, 2009 08.50 | 68 | 15 | 66 | 62 | 15 | 65 | 51 | 54 | 61 | Have been NOT filling in my symptoms page for a while now caused by general apathy rather than illness. at the same time I have been doing my usuall updating of the media page, adding films and music plus any good plays I hear |
| Wk24 Mon 7 Sep, 2009 22.41 | 68 | 15 | 66 | 60 | 15 | 65 | 50 | 54 | 61 | Started a poo at 19:30 and just finished! Despite this managed a 1x1 up the stairs with caneloni inside too although it was not very hot having been turned off at 19:30. I did a mamoth addition to rbut13.ahk today and added an input routine that seems to work ok... |
| Wk25 Sun 13 Sep, 2009 21.06 | 68 | 15 | 65 | 61 | 15 | 65 | 50 | 54 | 60 | I feel a poo coming on but I have all day so we'll see. Over all I feel pretty much the same as normal, despite the fact I have not been to HBO for a while. I can hear all the medics, wisely nodding their heads and saying "well what do you expect?" - well at £32 a month so what?. The temperature is down now at about 22ºC so I have been better off and they have sorted out a good place for me to work at work too in T101 - the build room My eyes seem to be finding it harder to focus so that is not good and I may take a days leave tomorrow and have a restfull day, although that seems to land me in more MS trouble - we'll see |
| Wk25 Tue 15 Sep, 2009 10.00 | 68 | 15 | 65 | 62 | 15 | 655 | 52 | 55 | 62 | Just had a poo and thus, prehaps, the eye tremor! Inaddition a 2x2 asceent was ok. Interestingly I tried a 2x2 earlier on and although my flexability was easily able to accomplish it I did not have enough strength - now I have. I did have a restfull day yesterday and all the worry came to naught! Thank goodness! |
| Wk25 Wed 16 Sep, 2009 14.35 | 69 | 14 | 65 | 63 | 14 | 66 | 53 | 56 | 63 | Well today is something of a red letter day! Over the last two hours, in order, I did 20 squats; 5 squats afterwards holding the bar; prepared and eat two hot tai chicken bite and two char sui pau rested 2 hours and have just ascended stairs 2x2 easily - what is going on??!! I have also rung people etc. and will tell of results tonight.My head phones tell me I must now (14.51) do some work... |
| Wk25 Wed 16 Sep, 2009 16.52 | 67 | 14 | 64 | 61 | 14 | 65 | 51 | 56 | 62 | 1x1 with ease but tired now, despite resting - going to bed... |
| Wk25 Fri 18 Sep, 2009 | 66 | 15 | 64 | 60 | 14 | 64 | 50 | 56 | 62 | Woke up this morning and only just made it to the toilet - what a difference a day makes - and I feel more tired - we will have to see how the day pans out - at present I feel 1x1 and I did dress no hands |
| Wk25 Fri 18 Sep, 2009 16.14 | 66 | 14 | 64 | 62 | 14 | 65 | 52 | 57 | 62 | In the last hour I did 10 squats; prepared some butternut squash samosas; had a quick rest and after eating the still hot samosas came upstairs 2x2 and tested my walking ability and although not as good as Wed 16 Sep, 2009 14.35 it was not too bad. Now I must do some work |
| Wk25 Sat 19 Sep, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo about 16:00 |
| Wk26 Sun 20 Sep, 2009 00.31 | 66 | 14 | 65 | 60 | 14 | 65 | 51 | 57 | 62 | When I had the poo yesterday about 2 Hrs. later I was in a very bad state and went to bed. At 23:31 I then got up; dresseed 'no hands' and have just come upstairs 1x1 with ease so not so bad... |
| Wk26 Tue 22 Sep, 2009 22.31 | -- | -- | -- | -- | -- | -- | -- | -- | -- | 25 squats monday and 2x2 ascents moost of day today aweful - went to TMSTC and saw Tim which was the only good thing. The temp. was up and I really suffered - failing to even get upstairs on return home on first attempt. I did make it but I was exhausted and now I will go to bed |
| Wk26 Wed 23 Sep, 2009 07.41 | 66 | 14 | 64 | 59 | 13 | 65 | 50 | 57 | 62 | Woke up at 06:00 - not bad since I hit the sack at 24:00 and had drunk my usual 10 gulps of water. I dressed no hands but then struggled to get upstairs but just managed 1x1 - more 1; togwther; 1 actually but certainly better than yesterday. I have real difficulty with my right hand side -- 'pain in the neck' but fortunately no hurt pain |
| Wk26 Sat 26 Sep, 2009 21.39 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo this morning at about 11:00 |
| Wk27 Sat 3 Oct, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo at 10:00; better than yesterday which started at 04:46 with me on the floor! |
| Wk28 Sun 4 Oct, 2009 10.48 | 66 | 14 | 63 | 60 | 13 | 65 | 50 | 57 | 63 | I have just tried the flexability to do a 2x2 stair ascent and it showed me that I could, indeed, do it. My strengh would be down though. At least after the Friday epiisode I can still do it. I got up this morning at 08:20 ish and managed a 'no hands'' dressing and came up to the study 1x1 without too much difficulty to find my 'Cranberry's cd ripped and with some new tracks - I may sack the video though as, having watched it, it is not stunning - I will make my own... |
| Wk28 Sun 4 Oct, 2009 21.03 | 66 | 14 | 63 | 62 | 14 | 65 | 53 | 57 | 64 | 2x2 ascent |
| Wk28 Tue 6 Oct, 2009 21.10 | 66 | 14 | 60 | 61 | 14 | 65 | 53 | 57 | 64 | tmstc was cooler today so I had a good session with tim and I then 'died' after the HBO tank due to the excessively warm temperature inside. It was quite warm outside too and, having had a warm cheese & onion pastie I really 'wilted'. I had a poo too tonight at 20:00hrs. and feel 'not too bad' now, having managed a 1x1 upstairs now with relative ease. |
| Wk28 Wed 7 Oct, 2009 06.52 | -- | -- | -- | -- | -- | -- | -- | -- | -- | no hands; 1x1; heating off... |
| Wk28 Wed 7 Oct, 2009 16.47 | 66 | 14 | 63 | 62 | 14 | 65 | 53 | 55 | 64 | How strange life is - an hour ago 2x2 was easy, indeed I also managed a walk across the living room without mt 'wheels'. Now I managed 2x2 'just' and the strength was a bit down. I will go to bed.... |
| Wk28 Wed 7 Oct, 2009 22.41 | 66 | 14 | 63 | 62 | 14 | 65 | 55 | 56 | 64 | 2x2 ascent; dress no hands; walk more easily and I am off to bed feeling not too bad. I have been there since 17:00 and feeling good |
| Wk28 Thu 8 Oct, 2009 19.54 | 67 | 13 | 63 | 63 | 14 | 65 | 55 | 57 | 64 | really tired when I came home at 18:00 so had hot shower and went to bed. I got up just prior to this post; no hands dress; 2x2 ascent and feel ok |
| Wk29 Sun 11 Oct, 2009 17.13 | 65 | 14 | 64 | 63 | 14 | 65 | 56 | 56 | 65 | speech ok - we will see better when lai-yen gets home; dressed 'no hands'; 2 squats; 2x2 ascent; - I have just been asleep since 15:40 |
| Wk29 Sun 11 Oct, 2009 19.23 | 65 | 14 | 64 | 63 | 14 | 65 | 55 | 56 | 65 | poo; squat; 2x2 ascent; poo; work! |
| Wk29 Fri 16 Oct, 2009 22.51 | 50 | 20 | 50 | 55 | 14 | 60 | 50 | 67 | 65 | Pretty awful week really feeling angry; uncared for; unloved; etc. etc... alhough actually I have been very concious that I am very fortunate and have upgrated my rbut.ahk file without too much problem. On monday Lina and I had a bit of a scare with Lai-Yen who woke up hot, was taken to the GP (via the nursery) and was ginen tami-flue- WHAT!!*?!.by wednesday it was very apparent he did NOT have swine flu whatever else he my have had. Panic over and today Lina took him to the nusery again so she could have her final day in the office at kirkham at LCC Education section. She has, seemingly, made quite a good impression in her short time there... |
| Wk30 Mon 19 Oct, 2009 15.13 | 55 | 19 | 52 | 58 | 14 | 63 | 53 | 60 | 64 | no hands dressed (but by no means easily); 1x1 ascent. For the record last saterday, when I was very low, I sat a while in my room knowing I would be yoo hot as I had not turned on the air-con. I was truely amazed to go down stairs for food and was able to re-ascend 1x1, easily. That has,absolutely, never happened before... I have also managed this morning to make a 'mask' for the thomas/lazytown videoso things are not too bad |
| Wk30 Mon 19 Oct, 2009 23.16 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo started 20:30ish finished 15 mmins ago-now bed!!By the way 1x1 |
| Wk30 Tue 20 Oct, 2009 13.46 | 65 | 14 | 64 | 63 | 13 | 63 | 56 | 60 | 65 | 2x2 ascent; 3Hr retention time. I had Tim this morning at tmstc and he gave my feet a good 'seeing to' and lina bought some food at trafford center that I will eat after I have done the spam |
| Wk30 Thu 22 Oct, 2009 22:38 | 60 | 19 | 52 | 58 | 14 | 63 | 53 | 60 | 64 | poo finish friday 00:38 then 1x1 ascent. |
| Wk31 Tue 27 Oct, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo at 2 |
| Wkyy --------Date--------- | -- | -- | -- | -- | -- | -- | -- | -- | -- | pooMon or Tue?? |
| Wk32 Fri 6 Nov, 2009 09.23 | 60 | 19 | 64 | 60 | 14 | 63 | 54 | 60 | 63 | took lia-yen to nursery because lina was tired and managed surprisingly ok. ascended 2x2 but low strength |
| Wk33 Mon 9 Nov, 2009 00.07 | 60 | 20 | 63 | 58 | 14 | 63 | 50 | 58 | 63 | Had a poo yesterday at 15:00 ish after going to Dunsop Bridge to feed the ducks. I had a very strange day struggling with my emotions to feel 'normal'. I felt rather strange all day having been up since 02:00 on Sunday morning 9 Nov, 2009 and beeing unable to sleep undisturbed, as I was woken on Sunday morning at 09:00 to go to Dunsop. I have also failed, comprehensively to help Dimitris do his php although I will continue with my page. I was obsessed and upset with the simplest programs failig to work and then discovered I was going to fail, whatever because of where I was putting the {} in the code- Dur- I am so much NOT a programmer! I just came up 1x1 now a will do the weekends spamm.. |
| Wk33 Thu 12 Nov, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | POO AT 20:00-22:00!! |
| Wk34 Monday Nov 16, 2009 21.31 | 60 | 20 | 62 | 55 | 14 | 63 | 50 | 60 | 63 | went for a poo from 17:46 to 18:46 - quite goood for me! and am now watching DV8 - I guesss this is what they call 'challenging. He certainly is challenging to work with! |
| Wk34 Fri 20 Nov, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo at 20:00 |
| Wk35 Fri 27 Nov, 2009 | 60 | 14 | 63 | 55 | 14 | 63 | 54 | 60 | 63 | poo at 23:35-01:00 |
| Wk36 Tue 1 Dec, 2009 20.13 | 60 | 14 | 62 | 55 | 14 | 63 | 54 | 59 | 63 | the temperature outside has dropped to approx -2º at night and, I would say, consequently I am much better now. I dressed 'no hands' this morning and got into the car,both at home and at tmstc without much difficlty. I have email richmond pharmacuticals about the stuff I heard last weekend spurred on by the fact I recived a reply from Professor Dave Mooney this morning to an email I sent regarding the afore mentioned work he is responsable for. My speech held up well this morning, talking to Tim and I have just had a poo(19:20-now) and came upstairs 1x1 with ease - so roll on the cold weather! |
| Wk37 Mon 7 Dec, 2009 22:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | Poo |
| Wk38 Fri 18 Dec, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo yesterday at 14::15-15:10 not SO bad |
| Wk39 Thu 24 Dec, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo 01:40-03:20 |
| Wk39 Sat 26 Dec, 2009 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo 09:00-11:00 |
| Sun-Tue 27-2 | -- | -- | -- | -- | -- | -- | -- | -- | paralysed | |
| Wk40 Wed 30 Dec,2009 23:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo-------------- |
| Wk40 Sat 2 Jan, 2010 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo - 11:00 |
| Wk41 Sat 9 Jan, 2010 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo - 14:00 |
| Wk42 Thu 14 Jan, 2010 23.58 | 58 | 14 | 62 | 54 | 14 | 63 | 53 | 60 | 64 | Happy Birthday tomorrow Lai-yen(today now Fri 15 Jan, 2010 00.03) Daddy celerbrated with a birthday poo! and a 1x1 ascent |
| Wk43 Sun 17 Jan, 2010 22:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | another - |
| Wk43 Wed 20 Jan, 2010 18:00 | -- | -- | -- | -- | -- | -- | -- | -- | -- | poo |
| Wk43 Fri 22 Jan, 2010 11:00 | 60 | 14 | 62 | 61 | 14 | 63 | 54 | 60 | 60 | Went to the toilet this morning and had an easie time of it. I have felt lethargic all day and untill now (16.57) have done no 'spam' but I will apply myself now... |
| Wk44 Tue 26 Jan, 2010 09:30 | -- | -- | -- | -- | -- | -- | -- | -- | poo | |
| Wk44 Sat 30 Jan, 2010 | 62 | 13 | 63 | 64 | 14 | 64 | 57 | 60 | 64 | I have taken this beetroot juice again today and can: walk; talk; play longer with Lai-Yen; dress 'no hands'; come upstairs 2x2 and do 10 squats ... Roll on ! I also went to the toilet this morning... I wondered why I was finding it easier to go to the toilet! - potatoe and grapes which Lina also has used help |
| Wk45 Wed 3 Feb, 2010 05.23 | -- | -- | -- | -- | -- | -- | -- | -- | -- | I went to TMSTC yesterday and they all commented how well I looked - the optimism is infectious!. It is far too hot there and martin has a new toy - £5000! that increases the oxygen in your body -I'll stick to beetroot :). As if to cation against over-optimism I spent 1 hour on the toilet last night at 19:00-20:00. Optimisticaly though it was not as hard as usuall - lets see how things work out ...I should say that despite being in TMSTC for HBO and a talk to everyone that I know, I did manage too A) talk a lot! B) get into the car, without hauling my legs in, so come on beetroot juice! |
| Wk45 Thu 4 Feb, 2010 20.22 | 62 | 13 | 63 | 64 | 14 | 64 | 57 | 59 | 64 | Went to the toilet again this morning and spent 15 Mins - This morning I got dressed and could not quite get my slippers on without holding my legs but managed to come upstairs 2x2, so not bad.I descided not to drink the 'Lina special brew' as my wee is rather red (hope with the juice!) and I do not wish to over do it as I had three cups yesterday |
| Wk45 Sat 6 Feb, 2010 10.20 | 62 | 13 | 63 | 64 | 14 | 64 | 57 | 59 | 64 | woke up this morning and dressed 'no hands' and could even put my slippers on 'no hands' too so that is good. |
| Wk45 Sat 6 Feb, 2010 17.05 | 62 | 13 | 63 | 64 | 14 | 64 | 57 | 57 | 64 | Went to sleep about 15:00 and now jumping like a kangaroo; came up 2x2; have other 'advanced tests' - namely ability to get up from toilet seat without using hands and passed that one too - roll on beetroot! |
| Wk46 Tue 9 Feb, 2010 21:02-22:02 | -- | -- | -- | -- | -- | -- | Went to tmstc today and toilet at the time of this entry - hard to go and mum rang earlier to tell me to eat prunes but I already do so there :) | |||
| Wk46 Wed 10 Feb, 2010 03.27 | -- | -- | -- | 58 | 62 | -- | just done 3 squats 2x2 ascent - bed----------------------------------------------------------------- | |||
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