My Salient Symptoms - as of 2007
Listed below are the symptoms I suffer from
    1) Ability to Express Apropriate Emotions
    2) Depression
    3) Dexterity
    4) Flexibility
    5) Incontinance
    6) Mental Agility
    7) Strength
    8) Tremor
    9) Speech
Some Explanation

I should say at this point that I donot think that any of these symptoms, however bad they have become so far has lead me to activly cdonsider suicide, although, believe me, I can understand people that do
    Ability to Express Apropriate Emotions (0-10; poor - good)
    This ia a weired one - I find it hard to laugh when I'm happy - often I cry - not because I suddenly feel sad but because I simply start crying. This happens to such an extent Lina often has to ask 'are you really crying - or are you ok?'

    Depression ( 0-10; good - poor)
    Here I am not talking about 'I'm really fed up' but total lack of joy, a lack of ability to comunicate with people important to me and a feeling that I cannot cope with the 'things that have to be done' - like renewing the tv license. A feeling that one is 'out of control' and a 'panic' ensues where one can only see the things that make it hard to complete the task in hand

    Dexterity ( 0-10; pooor - good)
     Such things as holding a spoon; tieing ones shoelaces; writing; undoing small screws and putting plugs in sockets become difficult and some times impossible. Always my left hand is better than my right

    Flexibility ( 0-10; poor - good)
     When I am getting dressed in the morning I sit on the bed - How far I can raise my feet off the ground in order to put them through the holes in my pants and likewise the legs on my trousers is a good indicator of how well my day will go. The morning is usually the worst and I sometimes have difficulty walking at all.
    The ability to raise my legs obviously impacts my ability to get up the stairs and mostly these days I can only go upstairs a stair at a time. It must be two years since I was able to ascend the stairs without hauling myself up using the banister rail as I do now.
    As with my dexterity my left side is better than my right meaning sometimes, when I do set off to go upstairs I go: left foot, together; left foot together and so on...

    Incontinance (0-10; good - poor)
     For some years now (5'ish)I have had difficulty expressing the last drops of my urine when I go to the toilet and I have noticed that I have to go, when I do, more urgently. The problem here is, without really planning to, I drink too little water - although I never have been thirsty -witness the day when I was about 21, when I walked about 10 miles; ascended about 1000m in a temp of about 28 degrees and drank 250ml of water!

    Mental Agility ( 0-10 poor - good)
     It is easier to say what I mean by lack of mental agility. Sometimes I get a feeling of being so overwhelmed by the necessity to make descisions that I simply stop talking. It becomes too much effort to say anything.

    Strength ( 0-10 poor - good)
     This is coupled to Flexability - If you have the flexability to raise your legfrom one stair to the next you then have to have enough strength to take your body weight onto the leg that is in front. To a greater or lesser degree this can be translated to how mugh you then 'haul' yourself up the stairs using the banister rail

    Tremor ( 0-10; good - poor)
     Although I do not suffer from 'essential tremor' that my friend and colleague Andy (now retired - as of 1st. April 2008) did I do suffer from my eyes trembleing which makes close work harder
    Speech ( 0-10; poor - good)
     When I am tired I cannot enuciate my words correctly - I do not know how I managed to forget this one - more a reflection of how little talking I do these days - Hi Ho :( but I added this Friday 23 05 2008
    An alternate, more succinct, table can be viewed here
    Weekly Index
    208-2009
    | Wk10 | Wk11 | Wk12 | Wk13 | Wk14 | Wk15
    Wk1| WK9 | WK17 | Wk33| Wk39| Wk41|
    2009-2010
    Wk01|

     

    This weekend I will start a new table an sync with my work weeks as they are then on week 17...
    ........Date........Appropriate Emotions Depression Dexterity Flexability Incontanance Mental Agility Strength Tremor Speech ...............................Comment...............................
    Sun 1 Jun, 2008 17.26
    45
    30
    60
    58
    30
    58
    55
    55
    58
    Started well;dressed with enough flexability to get my feet into pants; went to Dunsop Bridge again to feed the ducks and actually walked 30 meters without falling with the aid of poles; thence to 'Rascal's for BumBum Cars Home to do this and audio download from BBC
    Mon 2 Jun, 2008 13:25
    50
    30
    57
    58
    30
    58
    53
    55
    54
    At Countyhall now - new place; new enviroment - let's see how it goes
    Mon 2 Jun, 2008 22.16
    50
    30
    50
    55
    30
    55
    53
    55
    54
    Well that was a wrong - ish move. I SAID I was OK and should nhave played up the fact that I was TOO HOT abit more. When I got in I was very leathargic and rather tired. I am sure - as I can be - that had I been in front of an air-condition 'blower' things would have been better. I'll ask tomorrow - now after sleep since 19:00 I feel OK and the people were alll very friendly/helpfull
    Tues 03 Jun 2008 10:33
    56
    30
    52
    57
    50
    55
    53
    50
    54
    At MS therapy center - started well at 04:00 and still able to pick legs up to put pants on at 07:35. Went to work for 08:00 and set off at 09:15
    Wed 4 Jun, 2008 00.39
    55
    30
    -
    57
    50
    55
    54
    50
    56
    Slept from 20:00 til 22:00 - now off to bed - good end to the day cool position allocated for me at work and did some (abortive) work...
    Thu 5 Jun, 2008 23.50
    55
    30
    52
    60
    60
    55
    55
    50
    56
    Glad I was wearing the 'pads' today as I would have wet myself. that said I have finished today with a good sleep (17:30 - 22:00) and in a perverse way am enjoying feeling ill.
    The irony of it all - I asked, and was given, a place under the air con; got a cold as a result and paniced myself thinking I could end up paralised as before...I did not :)
    Weekend
    -
    -
    -
    -
    -
    -
    -
    -
    -
    I will blog an entry for this but basicaly did some scripting and 'getting better' on Saterday; Dunsop Bridge and the tip on Sunday and recovered by the evening
    Tue 10 Jun, 2008 02.36
    40
    28
    57
    60
    40
    60
    58
    54
    56
    Good day - I;ll fill out this on the blog. started well flexably; good talk - yes TALK with PW and SHOCH HORROR - a user re releasing some 'spam' for him and rounded off sleeping from 18:00 to 22:00 and now heading to bed after e-mailing lina her job application forms
    Thu 12 Jun, 2008 07.13
    40
    30
    50
    55
    38
    55
    52
    50
    55
    One stair start to the day...-
    Fri 13 Jun, 2008 06:51
    50
    30
    55
    60
    30
    60
    53
    45
    57
    Slept from 18:30 till 22:00 last night rested till 12:00; slept till 04:00 and rested ;bathed Lai-yen with Lina's help and so till now
    Sun 15 Jun, 2008 04.19
    52
    30
    -
    60
    30
    60
    52
    40
    57
    		 One stair at 03:00 - off to bed now
    -
    Sun 15 Jun, 2008 12.18
    52
    30
    -
    60
    30
    60
    52
    42
    58
    good sleep;good day - lai-yen howling...
    Sun 15 Jun, 2008 16.57
    53
    30
    40
    50
    35
    60
    48
    42
    58
    went for a walk in miller park - I was allowed to take the car in if my hazards were flashing. I took the wheels and pushed around the path to the fountain, which was drained - like me now!
    Lai-yen showed his new cars to some folk on a park bench and then walked up the steps to the top path. Hopefully he will learn the joy of 'the great outdoors'! We will see and I'll have to dredge up enough energy to go to the sailing club sometime! He should start swimming too!
    Thur. 19 Jun. 2008 08:20
    55
    30
    42
    60
    40
    60
    52
    40
    58
    Woke this am at 6:30 and had a 1.5 stair; dress myself without problem, start to the day. I then set up the PC to record 'bob' and got to work in time. I am going to HBO later so will try to do another entry then.
    Thu 19 Jun, 2008 21.58
    55
    30
    42
    62
    38
    60
    52
    45
    50
    Bed time now, had a good talk with dad re macafee - hence the lower 'speech' rating although I
    Sat 21 Jun, 2008 10.22
    55
    30
    42
    60
    35
    60
    53
    49
    50
    Despite being up from 1am to 4am this morning I woke at 07:40 am am doing ok. I'm not tired and will attempt to set up a 'neil#2' web page similar to neil#1
    Sun 22 Jun, 2008 12.50
    50
    30
    44
    62
    30
    60
    55
    45
    50
    two stair morning; afternoon... did the track list for neil#2 and also 'wild goose'
    Tue 24 Jun, 2008 18.29
    55
    30
    42
    60
    29
    60
    50
    50
    50
    One stair evening - good day
    Wed 25 Jun, 2008 00.47
    55
    24
    42
    60
    28
    60
    48
    50
    50
    I came upstairs yesterday at 23:00 two stairs at a time - so flexable have done some reconfiguring of the PC and installed adaware2008 -hence cjs-xp30 -now to bed
    Thu 26 Jun, 2008 06.12
    55
    24
    50
    55
    28
    60
    48
    50
    50
    Ones tair morning. Got a virus - Anti-virus software so reghosting as I writr this Hopefully enough time to burn bartpe cd too
    Saturday, 28 Jun 2008
    40
    40
    40
    50
    30
    50
    40
    55
    50
    done on sunday in retrospect at 18:00
    Sun 29 Jun, 2008 18.01
    55
    24
    50
    52
    33
    60
    50
    55
    51
    Recovered a bit now
    Tue 1 Jul, 2008 07.27
    40
    55
    47
    45
    33
    50
    40
    50
    51
    Dada Sick - dressing; stairs a problem - but done
    Tue 1 Jul, 2008 23.04
    53
    30
    52
    52
    33
    55
    52
    52
    53
    As you can see now I'm not too bad.
    Today was truely strange - I could barely walk during the day untill about 11:00 and, struggling as I was I was going through the door at work when Kirit, seeing me struggling with the door, tried to help. Result I fell as the door was moved open - "That was holding me up!" Bang - and I hit my head on the wall. Fortunately no harm done and for 1hour afterwards my walking ability was improved - presumably the adrenalin rush as I fell improved things. I got in at 17:45, went to sleep by 19:00 and stayed out until 21:45 - and now I can walk - as a test I dressed - no real problem getting my feet in pants - ascended stairs (1.5 stair ascent) and am doing this :)
    Wed 2 Jul, 2008 06.54
    55
    24
    -
    55
    33
    60
    50
    55
    53
    Better than yesterday - dressed ok-ish better than yesterday and came upstairs one pause otherone - ok ish
    Wed 2 Jul, 2008 18.39
    55
    24
    -
    54
    33
    58
    49
    56
    53
    I need SLEEP but got here 1 stair at a time
    Thu 3 Jul, 2008 07.11
    55
    24
    -
    54
    32
    58
    49
    55
    53
    2/1stair start; dressed ok; willgo to toilet at 07:25
    Fri 4 Jul, 2008 06:52
    55
    24
    58
    50
    30
    58
    48
    55
    53
    1 stair; can walk
    Sat 5 Jul, 2008 00.44
    56
    23
    59
    54
    29
    60
    50
    54
    53
    Got in yesterday evening; got upstairs (1 stair);got 'Cosmic Quest' and 'Breath' and went to sleep til midnight. Now much revived so finished off the 'cosmic' and 'breath' and about to do heleens 'settings'
    Sun
    -
    -
    -
    -
    -
    -
    -
    -
    -
    Mon07-Jul-2008 10:51 PM - as far as I remember Sunday was a hard day with low flexability; strength; and moral today is better
    Mon 7 Jul, 2008 22.54
    52
    23
    59
    54
    29
    58
    52
    56
    53
    Today was altogether much better - dressed ok in morning and tonight upstairs 22 by 2 and debuged my cd ripper
    Tue 8 Jul, 2008 20.13
    53
    23
    -
    50
    29
    58
    53
    56
    53
    Started ok; went for hbo; got tired afternoon at work; really tired in evening but added docking station and time sheet adjustment - claimed 2 hrs
    Thu 10 Jul, 2008 00.13
    55
    22
    59
    54
    29
    58
    53
    56
    56
    Good day from start to finish. Lina went to London to see the queen and I picked up Lai-Yen -bedtime...
    Sun 13 Jul, 2008 20.53
    53
    25
    54
    57
    25
    58
    55
    57
    57
    Started not too bad -got better as the day went on - Down to Manchester to China Town and back without wetting myself even though I had the pads on - Lina drove back I drove down and tomorrow we have her mum and EEE (Lilys to stay. Lina's Graduation is on Tuesday so we will see how that goes - I have made enough time for a flexi-day so on we go....
    Mon 14 Jul, 2008 05.25
    55
    22
    59
    57
    25
    60
    55
    53
    58
    Augers well...
    Fri 18 Jul, 2008 17.59
    57
    20
    60
    54
    20
    59
    55
    56
    58
    Dispite not having much more strength I have had quite a good day and added and updated my online adjusments for work. I fell over at about 15:40 but I was very tired am am now going to rest. Came upstairs to write this one stair at a time so not too bad
    Sun 20 Jul, 2008starts here on a new page

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    © Richard Cornford 2004